Wednesday, September 26, 2012
I'm lucky to be joining the chat to talk about my research with some amazing academics/advocates.
Check out the live-stream!
If you miss it you can also check out the archived interview, as well as other archived pieces with disability related discussions on their website.
Tuesday, September 25, 2012
Tuesday, August 7, 2012
A report about unionized workers at a state owned building in Ohio being replaced by non-unionized workers with intellectual disabilities caught my eye this week. While the report details the problematic nature of replacing unionized employees with non-unionized employees, for me this particular case speaks directly to the kinds of issues my own research around disability and employment seeks to address.
Monday, July 23, 2012
The recent ruling by British Columbia's Supreme Court to allow Gloria Taylor, a woman with a disability, to end her life has profound impacts for the disability community. While much of the public discourse around this issue is framed in terms of individual choice, the issue of suicide (assisted or otherwise) and disability extends beyond individual cases, as this debate reinforces the notion that disability is automatically linked to a reduced quality of life.
Rhonda Wiebe, who co-chairs the Council of Canadians with Disabilities' (CCD) ending of life ethics committee wrote a brilliant and eloquent piece in the Winnipeg Free Press that captures the impact these kinds of cases have on Canadians with disabilities. I would encourage anyone wanting to learn more about the disability communities views on this issue to read this piece.
To add to this issue, I want to share my own discomfort with this debate. Having a sibling with Down syndrome at a time when technology to screen and abort children with Down syndrome is met with overwhelming approval (over 90% of those who learn their child has Down syndrome through these tests will abort), has made the 'quality of life' debate that much more important to me.
The assumption is almost always that having Down syndrome means a life not worth living. I can assure you that this is not the case. Our peers with Down syndrome are valued and contributing members of society. Down syndrome does not condemn individuals to a life of pain and suffering, nor does its presence disrupt families, or drain communities of resources. Yet, when the issue of prenatal screening is debated, these are the misconceptions that those unfamiliar with Down syndrome tend to embrace as the truth. These notions in turn inform public perception and policy and negatively impact the lives of those with Down syndrome.
The foundation of current discourse around disability and quality of life issues is based on misinformed, negative, and stereotypical notions of disability. More problematically, we have excluded people with disabilities, who are the true experts in lived experience, almost entirely from this debate. Including these voice and their lived experiences would surly allow us to have a more informed debate.
Tuesday, July 3, 2012
My piece, "A Legacy of Exploitation: Intellectual disability, unpaid labor, & disability services", takes a historical look at the legacy of unpaid work for persons with intellectual disabilities.
While I'll be adding more as my own research progresses, this piece provides an overview of the issue of unpaid labour and intellectual disability.
Wednesday, April 18, 2012
Vanier Scholar Gives Back to the Community
Monday, March 5, 2012
A new focus group is taking place here at the OILRC and the coordinator is looking for participants to discuss the unpaid work of persons with intellectual disabilities in the home, community, and workplace.
Participants will receive a small honorarium.
Snacks and refreshments will also be provided.
When: Thursday March 22, 2012 at 1-3 PM
Where: The Ottawa Independent Living Resource Centre
If you are interested in sharing your experiences and providing important input to this research initiative, please contact, Jihan Abbas, by phone at 613-218-1160 or by email firstname.lastname@example.org.
This project has been reviewed and cleared by the Carleton University Research Ethics Board: 613-520-2517.